Motor Neurone Disease (MND) is a rapidly progressive, fatal disease. It attacks the nerves that send messages from the brain to the muscles, leaving people unable to walk, talk or feed themselves and eventually unable to breathe. Imagine a healthy and alert mind trapped inside a body that can’t move, but can still feel. That’s the devastating reality of MND. Every day 5 people will die from MND and around 5,000 people in the UK are living with MND at any one time. Half of all people die within 14 months of diagnosis.
The MND Association is the only National Charity that provides care and support for people living with MND. We fund an extensive range of services including a vital equipment loan service, care and support and also a help and advice line so nobody need ever feel alone. They also fund research into this terrible disease to ultimately find a cure so that one day we can have a world free of MND.
The Association was formed in 1979 by a group of volunteers who wanted to co-ordinate support, guidance and advice for people affected by the illness. They now have 1,500 volunteers and 120-plus paid staff, all dedicated to improving the lives of people affected by MND, now and in the future.
Torpedalo’s connection with MND is a personal one – in 2005, Mike lost his beloved grandfather to the disease. Having witnessed first-hand the tragic way in which MND slowly robs the sufferer of their dignity and life, Mike decided that he wanted to raise as much money as possible for the major charity that cares for MND sufferers and carries out research in to treatments.
Kirstine Knox, Chief Executive of the MND Association, said: “We are thrilled to have been chosen as one of the Charities to benefit from this enormous challenge. The progress made in the support of people with MND and the research into the terrible disease is staggering, but the need for support remains urgent, so a big thank you to everyone involved for choosing to support the MND Association. We are looking forward to working with you all on what I’m sure will be a very successful and fun-filled two years!”
Motor Neurone Disease Association is a registered charity (294354)